The Perspectives of Young Adults with Cerebral Palsy on Transition to Adult’s Health Care and Rehabilitation
Publiceringsår
2025
Upphovspersoner
Jeglinsky-Kankainen, Ira; Vänskä, Nea; Kinnunen, Anu; Sätilä, Heli; Sipari, Salla
Abstrakt
The purpose of this study was to describe the perspectives of young adults with cerebral palsy on participating in the transition process when transitioning from children’s health care to adults’ health care and rehabilitation. A phenomenographic approach with data collected with semi-structured interviews was used. Fourteen young adults aged 19–26 with cerebral palsy participated. The analysis resulted in four categories: (1) need for comprehensive and participatory rehabilitation; (2) barriers in the rehabilitation system; (3) self-awareness, courage and activity are rewarded; and (4) a dream of an active role in society. To conclude, the young adults had both positive and negative experiences of the transition process as well as of the rehabilitation planning at the adult health care service. It is important to start the transition planning early, and to involve the young adult as an active participant in the planning process. Both in the transition phase and in the adult health care service an anticipatory and collaborative approach where the young adult’s holistic needs would be considered should be standard practice. A focus is needed on how to grow towards a good adulthood and how to live a meaningful life as a valued member of society.
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Publikationstyp
Publikationsform
Artikel
Moderpublikationens typ
Tidning
Artikelstyp
En originalartikel
Målgrupp
VetenskapligKollegialt utvärderad
Kollegialt utvärderadUKM:s publikationstyp
A1 Originalartikel i en vetenskaplig tidskriftPublikationskanalens uppgifter
Journal
Moderpublikationens namn
Förläggare
Volym
5
Nummer
1
Sidor
12
ISSN
Publikationsforum
Publikationsforumsnivå
0
Öppen tillgång
Öppen tillgänglighet i förläggarens tjänst
Ja
Öppen tillgång till publikationskanalen
Helt öppen publikationskanal
Licens för förläggarens version
CC BY
Parallellsparad
Ja
Parallellagringens licens
CC BY
Övriga uppgifter
Vetenskapsområden
Hälsovetenskap
Nyckelord
[object Object],[object Object],[object Object],[object Object],[object Object],[object Object]
Förlagets internationalitet
Internationell
Språk
engelska
Internationell sampublikation
Nej
Sampublikation med ett företag
Ja
DOI
10.3390/disabilities5010012
Publikationen ingår i undervisnings- och kulturministeriets datainsamling
Ja