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The Perspectives of Young Adults with Cerebral Palsy on Transition to Adult’s Health Care and Rehabilitation

Publiceringsår

2025

Upphovspersoner

Jeglinsky-Kankainen, Ira; Vänskä, Nea; Kinnunen, Anu; Sätilä, Heli; Sipari, Salla

Abstrakt

The purpose of this study was to describe the perspectives of young adults with cerebral palsy on participating in the transition process when transitioning from children’s health care to adults’ health care and rehabilitation. A phenomenographic approach with data collected with semi-structured interviews was used. Fourteen young adults aged 19–26 with cerebral palsy participated. The analysis resulted in four categories: (1) need for comprehensive and participatory rehabilitation; (2) barriers in the rehabilitation system; (3) self-awareness, courage and activity are rewarded; and (4) a dream of an active role in society. To conclude, the young adults had both positive and negative experiences of the transition process as well as of the rehabilitation planning at the adult health care service. It is important to start the transition planning early, and to involve the young adult as an active participant in the planning process. Both in the transition phase and in the adult health care service an anticipatory and collaborative approach where the young adult’s holistic needs would be considered should be standard practice. A focus is needed on how to grow towards a good adulthood and how to live a meaningful life as a valued member of society.
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Organisationer och upphovspersoner

Metropolia ammattikorkeakoulu

Vänskä Nea

Sipari Salla

Yrkeshögskolan Arcada

Jeglinsky-Kankainen Ira Orcid -palvelun logo

Publikationstyp

Publikationsform

Artikel

Moderpublikationens typ

Tidning

Artikelstyp

En originalartikel

Målgrupp

Vetenskaplig

Kollegialt utvärderad

Kollegialt utvärderad

UKM:s publikationstyp

A1 Originalartikel i en vetenskaplig tidskrift

Publikationskanalens uppgifter

Moderpublikationens namn

Disabilities

Förläggare

MDPI AG

Volym

5

Nummer

1

Sidor

12

Publikationsforum

90064

Publikationsforumsnivå

0

Öppen tillgång

Öppen tillgänglighet i förläggarens tjänst

Ja

Öppen tillgång till publikationskanalen

Helt öppen publikationskanal

Licens för förläggarens version

CC BY

Parallellsparad

Ja

Parallellagringens licens

CC BY

Övriga uppgifter

Vetenskapsområden

Hälsovetenskap

Nyckelord

[object Object],[object Object],[object Object],[object Object],[object Object],[object Object]

Förlagets internationalitet

Internationell

Språk

engelska

Internationell sampublikation

Nej

Sampublikation med ett företag

Ja

DOI

10.3390/disabilities5010012

Publikationen ingår i undervisnings- och kulturministeriets datainsamling

Ja