Autism in tension between diagnosis and experience: interview and questionnaire data

Beskrivning

The thesis, working title “Autism in tension between diagnosis and experience”, explores autistic people's perceptions and experiences of autism, diagnostic processes and various support and rehabilitation services. The data collection was conducted during the first half of 2024. Adults who identify themselves with autism were invited to participate in the study. The invitations were distributed through national and local organisations and social media groups. Data was collected through a) thematic interviews (N=24) and b) a questionnaire (N=107). Both sets deal with the experiences and meanings associated with autism, experiences of diagnostic processes and support and rehabilitation services, and well-being. The collection and processing of the data was supported by a grant from the Finnish Society for Disability Research.
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Publiceringsår

2025

Typ av data

Upphovspersoner

Yhteiskuntatieteiden ja filosofian laitos

Uisma, Aino Orcid -palvelun logo - Upphovsperson, Rättighetsinnehavare

Virkki, Tuija Orcid -palvelun logo - Upphovsperson

Ylilahti, Minna Orcid -palvelun logo - Upphovsperson

Projekt

Övriga uppgifter

Vetenskapsområden

Sociologi

Språk

finska

Öppen tillgång

Begränsad tillgång

Licens

Other (Not Open)

Nyckelord

questionnaire, terveydenhuolto, rehabilitation, kuntoutus, haastattelu, well-being, autismi, kysely, autism, diagnoosi, diagnosis, neurodiversity, neuromoninaisuus, interview

Ämnesord

välfärd, autism, diagnos

Temporal täckning

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